Raising awareness of rare diseases
11 July 2017
Ely Pleitez suffers from the rare degenerative disorder ataxia-telangiectasia – more commonly known as A-T. So rare is the condition, there are only some 50 diagnosed cases in Australia. As such, treatment and support options for patients are severely limited. While Ely isn’t looking for a cure, she is hopeful that medical researchers can develop treatments to make life easier for her and her family.